HOME
Case: Mrs Leung
Miscommunication with family in advance care planning
Mrs Leung, an 80 year old lady, was admitted to the medical ward of an acute hospital, with orthopnea. She has a 10 year history of congestive heart failure and recent echocardiogram shows that the ejection fraction is 15%, on optimal medical therapy. She has increasing bradycardia, and rapidly deteriorating renal function. She lives with her husband, and have had advance care planning conversations with the medical team in charge, and after discussion with cardiologist for suitability of pacing, and renal physicians for dialysis, who considered that there will be no benefit for these procedures and the patient also preferred medical therapy alone, the management plan was to just continue medical therapy.
She was given iv. Dobutamine drip and oxygen. She was unable to lie down and had to be upright all the time, being very dyspneic. Her mouth became very dry and cracked, with some bleeding. The ward was full of extra beds and her bed was situated half way into the main passage way to the toilet and shower room.
In view of the undesirable surroundings and lack of personal comfort care, it was planned to transfer her to a non-acute hospital for palliative care. Just as this decision was made, her daughter appeared and threatened to complain to the Patient Relations Office, demanding pacing and dialysis and refusing to let her mother be transferred. She is a nurse and had seldom visited in the past. Because of this occurrence, the transfer was delayed pending explanations and interviews with the daughter. The patient died the next day, in great distress and with cracked and bleeding mouth.
---------------------------------------------------------------------------------------------------------------
Themes: acute vs palliative care, advance care planning, conflict between family and health care team, goal setting, life-sustaining treatment, heart failure end of life care